Jo Ann Simon has given us, as human beings, and as caregivers ( I care for my 94 year old mother who I blame for my love of books!) an honest, gut and soul wrenching, and yet beautiful story of her journey to save her husband Tom from the grip of ALS but to no avail.
Rose Colored Glasses: A Memoir of Love, Loss, and Hope (E.L. Marker, 2018) is a powerful presentation of a wife’s caregiving journey, and more importantly, love giving journey. In this book Simon chronicles her journey from a divorcee’ to that of a woman deeply in love to a wife who is possessed with all strength and hope that her husband can be freed from the grips of ALS.
If you have been a caregiver, a spouse, a child, a friend, a significant other, of one who has a terminal illness, you will see yourself in Jo Ann’s story: the desperate hope against hope which refuses to give up on a cure, a perceived misdiagnosis; the passionate pursuit of medical personnel who know what is going, who know what to do; the intense persuasion of letters, calls, emails to get a treatment approved; the growing and final realization that the battle is lost…but love is not; the days, weeks, months after…learning to live again. It is all in this book.
Written in a journal style, Rose Colored Glasses brings you along as you walk with the author as she faces the pain, the hope, the loss, and the love of caring for someone who is terminally ill.
This is a powerful and human book. It is not sugar coated nor clinical (though there is a section at the end of the book which presents links to ALS research). It is human..one that serves to remind us of the power of love and hope in all of us.
This is a wonderful book especially if you are a caregiver and with a group discussion guide, you will have the opportunity to process Jo Ann’s journey and your own.
I gave this book a four-star rating on Goodreads.
Note: I received an e-copy of this book in exchange for a review from the publisher via Smith Publicity. I was not required to write a positive review.